Sorry...I've been sick...

Hello family and friends and fellow bloggers...
It's been a while since I have updated my blog...but I have a good excuse "I've been sick" with this really weird syndrom called "neglectablog". (pausing for laughter) I know hilarious  just a little funny right? Ok...in all seriousness....I don't really have an excuse. I just wait until we have an appointment to update it. Guess I need to break that habbit!! Luke had another helmet fitting Monday (this was his 4th visit to the naperville office for his helmet). It went great. They cut the helmet up over his right ear because it was touching and is not suppose too and the cut the neck up a little higher(which makes this momma happy because it' a little easier to zurple (sp?...basically making farting noises:) on his neck and of couse give him kisses there too!! The orthosist said we are just "going through the motions" with the helmet. His head looks great and the picture is pretty much the same as last time so we are just keepin on keepin on with it. We are so excited to go in December to see Luke' plastic surgeon and to see what he thinks! :) As for the rest of Deckerville...things are going great. Excited for trick or treating and then jumping right into thanksgiving crafts and decorations ect the next day:) I have already been Christmas shopping (a little) and plan to continue to try to get one or two things taken care of each week!! This year we are getting Lane a fish tank for Christmas...HE LOVES THEM. Ever since we stayed in Chicago at the childrens hospital he talks about them a lot! I am excited for him...however I am a little curious how the "dying" of the fish will go, I am sure Lane will do just fine and we'll handle it well, we probably won't even tell him. We'll just say "he's all gone" and get him a knew one:) My curiosity is how I will be able to flush them! I don't want to do that!! (However I've never had to do that so maybe I'll be ok....to be continued I guess). As far as Luke goes for Christmas...he has a thousand little baby toys and loves all of his brother's toys anyways...so we may do something "practical" and still a little something special toy wise! I see little walk behind toys and things that are "new" and I want, but we already have from when Lane was this age...however do I really need 2 of the same type of toy? More taken up space, more to pick up, more to clean ect... Being the 2nd child(and my hubby the 3rd) I DEFINATLY will get him his "own" stuff...when it' old enough to matter to him:) My AMAZING husband has been talking about my Christmas gift for almost a year it seems. He has been "working" on it for a long time!! And I have NOOO idea what it is. I am super excited though that he is so excited about this surprise for me:) Last year his surprise was the iphone 4s I told him he wasn't getting:) And this year....NOO CLUE YET!! I have to get to thinking. Sure there is LOTS of things I want to get him...but they are just EH' OK...and I'm looking for the wow factor always when it comes to my hubby because he is great;). So...to be continued on that too. Oh and for those of you who "know" me...he has actually already got a Christmas gift(I should NOT shop early for him as I always seem to ruin the surprise.) This one lasted about 10 minutes...I had gone to the christian bookstore to get some stuff for my niece's baby dedication and I saw a Tim Tebow book about his life, walk with Christ ect...I thought "well that'd be one little gift from me or the boys for him for Christmas"...oh about 10 seconds  minutes after heading to putting  it in the "Christmas gift spot" I pulled it out, shoved it in his face and said "I got you a book:)" Haha! He wasn't surprised I ruined the surprise:) He's been reading it and really enjoying it. Well that is all for now. Hope this post finds you all well AND
 Happy Halloween !  Look for the little "fire fighter" and his "dalmation puppy" tonight trick or treating:)

OMG IT'S BEEN A MONTH!!!

WOW!!! I can not believe a month has passed since I posted. FYI...I did create a post from the day we recieved Luke's helmet and wouldn't you know I never posted it (even though I was pretty sure I had hit publish when I finished it a week or so later). Even still that would have been 3 weeks ago had I posted that correctly and that is still WAAAYYYY too long!! So let me get you up to date.....
Luke recieved his helmet on Monday Sept 17th! At the appointment they showed Matt and I how to take it off and put it on, clean it ect... They also went through the risks of red spots that we had to watch out for. We started out having him wear it 1 hour on then a half hour off, then 2 hours on, a half hour off, and so on and so on until he was wearing it the 23 hours a day that they had instructed. He did so well adjusting to it(as they said he would) and had limited red spots! The doctor told us as long as they subsided with in 30 mins of the helmet being off then it was ok...which they almost always did. So he has had it for 3 weeks and looks soo adorable. I am not going to lie....the day they put it on him for the first time...my eyes swelled up in tears and Matt had this look on his face that I can't even describe. We of course instantly thought he was so cute and are BEYOND GREATFUL this is temporary, available, and on and on and on...but to be completly real....it took just a second(literally just that night we drove home until the next morning) and then we were completly humble again. But like I think any parent would feel....we were just a little overwhelmed. And it had been 3 1/2 months since his surgery...his head was looking great, his hair was coming in, his scar was lightening, and things were just feeling so "normal"...and then they put this cranial molding helmet on him....and it just was a rush of a reminder of what he went through. The way the helmet shaped around his little face also reminded us of the exact face he had when his head was wrapped after surgery those days in Chicago where we could only see from the eyelids down. Now like I said....that sadness and emotions literally lasted not even 24 hours....we are SOOOOOO THANKFUL that this is ALL we are dealing with because so so many deal with so much more:( With that being said....here are some pictures of Luke in his "helmie" (as I like to call it...always a name for everything from this girl, my cars I've had : Syndey Sunbird, Connie Contour, Mable Monte Carlo, Ellie Esacape, and currently Cara Caravan, my favorite coffee cup Genavive....and I'll just stop there hee hee).

Here he is yesterday on the way home from the fitting...they actually cut it up higher off his eyes!! (love seeing more of those baby blues:) But when we initally got his helmie it was much lower...I will have to upload a pic of that once I get it downloaded....

Now this to us is amazing....here is the picture of the top of his head from July 23rd(the original casting day) Look at the bump on the left side of his head....

(ahhh!! I rotated it in my pictures and it was correct then I upload it and it flipped! Sorry)

Now look at the picture from Monday October 8th.....

Again I am sorry that they are not horizontal....but can you see the difference?? The bump is pretty much gone!! The doctor said he is improving significantly! We go back at the end of the month for another fitting!!:) We are soooo blessed and give God ALL the glory for this amazing transformation in our son's life.

And for the big brother who is always sooo good on our 4 hour trips for a 15 minute doctor appointment....here he is being his supportive self like always.....

SEPTEMEBER 17th...

OCTOBER 8th....

Everything else in "deckerville" is going great. Matt has joined our churches praise and worship band and I could not be more happy for him. He is great at playing the guitar and has the perfect heart for this. He is so humble and is doing this ONLY for God and the calling he felt God gave him.  I am excited to see his closeness with God get even greater through this new addition in his life. We are enjoying listening to christian music even more around this house and the boys and I just love to sit with him as he practices. BLESSED to be married to such an AMAZING man :)

As for this momma....all is good in the hood. My clients are fantastic for adjusing their appointments when needed for these doctor appointments with Luke(ecspcecially since we go on Mondays and I only do hair Mondays and Saturdays) and dance has been so fun as I have about an hour a week with girls 4 and under which of course I LOVE! THEY ARE SOOOO CUTE, I can barely stand it!!! :) I have been working on some personal goals (like getting up before my kids a couple days a week and some other things) that are going well!!!

I promise to get back to my regular posts for those of who enjoy this blog. And like always THANK YOU FROM THE BOTTOM OF OUR HEARTS for your love and support and prayers these past 8 months!  (oh my goodness Luke will be 8 months on Sunday)

 We love you!